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A World-Wide Army In Search of A Cure

 

by Michael Pasternak, Founding Trustee

 

Since January 2011 our Foundation has had thousands of people step forward to assist us in finding a cure. This “Army of Volunteers” is funding our Four Scientific Research Projects to find a cure for Trigeminal Neuralgia (TN) and Related Neuropathic Pain.  More people are stepping forward every day to assist us in our cause. People understand that real scientific research is expensive.  So far, over $1,500,000.00 has been donated and pledged by our Volunteers to end the pain! Over 98% going directly to research!

 

People realize “for the first time there really is research happening to end this horrific disorder and they want to be a part of the solution by volunteering their time, energy and resources. Some send dollars to the Foundation online (www.facingfacialpain.org) or in the mail (FPRF, 2653 SW 87th Dr., Suite A, Gainesville FL 32608-9313), and many are creating fundraising events and activities.  The variety (types of events) is growing every month and they are providing our scientists with the monies necessary to  continue their work.

 

Here are some of our recent fundraising happenings (and all of these fundraisers are eligible to receive matching funds from the Cilker Family $500,000 matching gift to The Foundation!).

 

Cori Murdoch, a “twenty-something” Trigeminal Neuralgia patient told me this morning that “the check is in the mail”! Over $3500 profit from the Face The Music fundraising event in Vienna, Virginia on August 30th. She said “The pain was intense during the music but it was totally worth it!”  Truly committed to finding a cure, Cori had her second microvascular decompression surgery the week after the fundraiser.  Cori’s friends are planning another event between now and the holidays!

 

Pat Tomasulos wife Amy has TN. (He is the sports anchor and reporter on the WGN Morning News, an amateur comedian, and host of a nationally televised reality show.)

On January 15, 2015, Pat will be hosting “Laugh Your Face Off,” a comedy fundraiser to benefit  The Facial Pain Research Foundation.  The Show will be at The Laugh Factory, Chicagos largest Comedy Club, featuring performances by comedians Pat McGann (The Late Show with David Letterman), Mike Toomey (HBO, WGN Morning News), Pat himself and other special guests. There will also be food, great raffle prizes, and much more.  All money raised will go directly to The Facial Pain Research Foundation.

 

Amy Jones and the ICE Athletic Center in South Bend Indiana held a very successful Golf Outing September 29, 2014 at the Morris Country Club in honor of Frances Shavers (You Tube: Frances Shavers, The Suicide Disease)...All proceeds going to The Foundations Pain Research.

 

Sara Spooner and her friends are planning a 5K “Race To Save Face” in the Boston Area next year. The Course and permits are approved. “People love to run for a cause”!

 

The Foundation just last week received $10,000 from Judy and Gary Littleton from the amazingly successful Dover Ohio “Race to Save Face”.

 

Allison Robb and her TN Crusaders will be running again this year in the Hartford Marathon and Half-Marathon on October 11. Last year her group raised “big bucks” for our research in honor of her cousin in pain, Dayna Lawlor.

 

Greg Masters lives in the Blue Mountains of Australia. He is organizing Australian Professional Sports teams to donate raffle/auction items for him to raise research funds.

Greg is also donating his tattoo artistry to helping with our Foundation publications.

Speaking of Australia, this year Irene Wood and TNA Australia collected $500 for our research and Brian Power sent $600 from TNA Western Australia.

 

Tim Guith and the Detroit Support Group “Pass The Hat” at each TNA Facial Pain Association Support Group Meeting to collect money for research. Shirley Luscinski’s

Middle Tennessee Support Group has been sending “dollars for pain” for many months!

$500 just arrived from Rohn Harmer and the Tampa Support Group.

 

Frank Skoviera of Florida has recently applied for an IBM Community Grant to help fund the research.

 

Tom and Susie Wasdin provided the $120,000.00 Matching Grant to get the fund-raising going the first year of the Research Foundation. Recently the Foundation received another $10,000 from them. They have been raising the money by holding book signing events to announce the publishing of Tom’s new biography “Once A Coach, Always A Coach”.  Tom’s fight with trigeminal neuralgia is an important story within his life-story.

 

Karla Gudgeon is an amazing 22 year old TN patient in England. Last month she graduated from Lancaster University and celebrated by doing a fund-raising event called abseil (rappel down a mountain)…collecting sponsorships along the way!

Karla also makes greeting cards and sells them in several town shops to raise money for our research. She has just finished a Facebook site for others who wish to purchase her cards.  She told me this morning that she has another 500 pounds waiting to be sent to us!  Speaking of the UK Foundation Supporters, Nikki Samuel has sold out her TN pins and has 1500 pounds of profits to send us for research.

 

Last holiday season Lorraine Burgess of Canada and the adults in her family held off purchasing Christmas gifts for one another.  They sent the money to our Foundation to help fund research. Since then, a steady stream of monthly donations have arrived on our WebNewspaper subscription/donations page. Speaking of Canada, Support Group Leader Brenda Sharp’s husband took the ice-bucket challenge and we received $100 from his fun and generosity!

 

Megan Hamilton continues to make and sell her jewelry to raise money for our research. She and her daughter, Katie Rose, are an inspiration.

 

I could go on and on…“Zumba-thon”, Bake Sale, Dinner at a local restaurant with profits going to research, student fundraising activities, you name it! An Army of Volunteers is at work to find a cure for Trigeminal Neuralgia and related neuropathic pain. The Trustees of The Facial Pain Research Foundation truly appreciates all of our Volunteers. We have a vision and we intend to succeed. That is our Mission.

 

Our world renowned scientists know how hard people are working to fund the research to find a cure and they intend to succeed.

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