The first night, ten years ago, that Myron A. Hirsch put the Afternoon Edition, the Facial Pain Research Foundation’s web newspaper, online, he received an email.
“Oh, no, a toothache,” I thought. I didn’t know, because I had no idea it existed, that I was experiencing the first symptoms of Trigeminal Neuralgia, the kind of agony typical of the disease, one of the most painful illnesses known to humanity.
Dr. Joanna Zakrzewska at the Pain Management Centre, National Hospital for Neurology and Neurosurgery in London, UK is the International Research Coordinator for the Facial Pain Research Foundation.
Orion P. Keifer, Jr., M.D., Ph.D., is Vice President for discovery and translation at CODA Biotherapeutics Inc. in South San Francisco, California. He is a neuroscientist with neurosurgical expertise in small and large animal models, focused on small molecule, biologics, and cell and gene therapies for neurological diseases.
It seemed like Trigeminal Neuralgia took everything from Erin Canter. After being diagnosed, her entire identity shifted and she lost many critical aspects of what made Canter herself: the ministry she loved, her job, an active lifestyle, and social world.