Send  your Name and Email Address and receive more info on Foundation and Research info@facingfacialpain.org
   
   

Board of Trustees 

 

The Facial Pain Research Foundation

 

Jay Weiner, Douglas Anderson, Suzanne N. Grenell, Michael Pasternak, Myron A. Hirsch, Elizabeth Cilker Smith

Roger L. Levy, Pat Tomasulo

 

International Science Meeting 

 

March 8 thru 10, 2017

 

Gainesville Florida

 

 Founding Trustees

 

Myron A. Hirsch, Ph.B., an author, editor and book publisher, founded Whitehall Printing Company (a book manufacturer) in 1959.  The company prints thousands of books each year, including educational books on neuropathic facial pain for patients and their families, as well as health-care professionals. Hirsch also is editor-in-chief and publisher for Collage Books Inc. He is championing efforts to find a cure out of passionate concerns for his wife, Harriet, who experienced a return of trigeminal neuralgia in August 2010 after enjoying many pain-free years resulting from a Gamma Knife® procedure. He is a former president of the TNA-FPA, and was an active board member for 8 years. He and Harriet live in Naples Florida. Today Harriet is again pain-free.

 

Roger L. Levy, Esq., LLM, AIFA®, is a former attorney now serving as CEO of Cambridge Fiduciary Services LLC, a fiduciary consulting firm based in Scottsdale, AZ. Educated in England, he practiced law in London and was a partner in Taylor & Humbert, one of Englands oldest law firms, before immigrating to the United States in 1975 where he joined Saul Ewing Remick & Saul in Philadelphia. He holds a Masters degree from Temple Law School.

Levy became an international spokesperson for the cause of trigeminal neuralgia for a compelling personal reason. For eight years, he suffered in a wilderness of painthat shut down his career and forced him into a dark corner of silence. When his pain was finally ended in 1997 through microvascular decompression surgery, he became an active volunteer with the TNA-FPA and Chairman of its Board from 2000 to 2013. He has continually championed the need to find a cure. He and his wife, Maddie, live in Scottsdale.

Effective  May 25, 2017 Roger L. Levy retired from The Foundation's Board of Trustees.

 

Michael Pasternak, Ph.D., an entrepreneur who co-founded the worlds largest retail hosiery company, started a Trigeminal Neuralgia Association support group in Nashville, Tenn. after suffering with trigeminal neuralgia. He later left the corporate world and became a board member and subsequently president of the TNA-FPA. He coordinated the associations early national conferences for health professionals and patients, and helped it develop patient materials, support groups and a patient registry. Prior to his business career, he served as a professor at Vanderbilt University, the University of North Carolina and Michigan State University where he taught courses in Understanding and Improving Organizations and Leadership. Pasternak underwent successful microvascular decompression surgery for TN in 1992, and remains pain-free today. He and his wife, Sherrilyn, live in Gainesville Florida. 

As a Founding Trustee of The Facial Pain Research Foundation Michael is focused full-time on the Foundation’s research, fund-raising, and organizational activities.  Michael and his wife Sherrilyn enjoy their ten grandchildren, agility dogs, and travel.

 

 

 Trustees

 

Douglas K. Anderson, Ph.D., Eminent scholar professor and chairman emeritus of neuroscience at the University Of Florida, College Of Medicine (UFCOM) and McKnight Brain Institute (MBI).   As Director of Research of the Facial Pain Research Foundation (FPRF) Dr. Anderson has been responsible for setting the research priorities of the FPRF by selecting five diverse,

novel projects to fill out its research portfolio.  Dr. Anderson is known for his pioneering laboratory research that led to the nations first implantation of human embryonic nerve tissue in eight patients with a specific complication of spinal cord injury in order to establish the safety and feasibility of nerve tissue transplantation in humans.  Prior to his transplantation studies,

 Dr. Anderson contributed significantly to the development of the first frontline medication for acute spinal cord injury. A graduate of Michigan State University, he was selected to be  a senior research career scientist with the Department of Veterans Affairs in addition to serving 10 years as chairman of the Department of Neuroscience at the UFCOM and interim

executive director of the MBI for a year prior to his retirement.  He and his wife, Beth, live in Gainesville, FL. and in Carmel, IN.

 Suzanne N. Grenell, MBA, is a creative writer, poet, motivational speaker, and author of several inspirational books, including End The Pain; Neuropathic Facial Pain Expressions and Impressions. She became an active volunteer in helping others after suffering with trigeminal neuralgia for a dozen years, and overcoming two bouts with breast cancer. She is now pain-free, cancer-free and medicine-free. After earning a Master of Education degree at the University of Minnesota and an MBA at Arizona State, she taught high school social sciences for six years and served in worldwide positions with Intel Corporation for 23 years. She is a former member of the TNA-FPA Board of Directors, and lives in Scottsdale, AZ.

 Elizabeth Cilker Smith is recently retired after 25 years at Cilker Orchards. There she served as Vice President assisting with the development of commercial, residential and office development in Silicon Valley, California. During that time she organized the Town of Los Gatos business Boulevard Community Alliance, served on the General Plan Committee, presided as President of Los Gatos Rotary and was a member of various nonprofit boards. After suffering from Trigeminal Neuralgia for 6 years she had a successful micro- vascular decompression surgery.  Since then her passion is to help others so no one suffers the traumatic pain that afflicted her. She served as Secretary of Trigeminal Neuralgia Association and later became the West Coast Coordinator of FPRF.

Through her parents, she facilitated the donation of the William H. and Leila Cilker grant to the DNA Genetic Research Project. Elizabeth holds a MA in Education, serves on the Cilker Orchards Management Corporation Board, and the West Valley Community College Advisory Board for the Bill and Leila Cilker School of Art and Design.  

 

Pat Tomasulo is the Sports Anchor and Reporter on the WGN Morning News.  He joined WGN-TV in June 2005.  Prior to coming to WGN-TV he was a Sports Reporter and Anchor in Buffalo, New York and in Rhinelander, Wisconsin.  In August of 2009, Pat was voted one of the top five broadcasters chosen to sit alongside Kelly Ripa as co-host to Live with Regis & Kellyas part of a nationwide promotion. He was also one of the hosts of Shaq Vs,a nationally televised reality show featuring basketball superstar Shaquille ONeal. Pat and Amy Tomasulo have raised over $500,000 at three “Laugh Your Face Off”  comedy fund-raisers benefiting The Facial Pain Research Foundation at the Chicago Laugh Factory.100% of the proceeds were donated to The Facial Pain Research Foundation. Pat Tomasulo, the event's host and one of the scheduled comedic performers, has personal experience with the disease as his wife, Amy, has suffered from its devastating effects for years.

 Jay Winerindependent marketing/public relations consultant and fund-raiser, formerly served as executive director of public relations and community affairs for The Grove Park Inn Resort and Spa in Asheville, N.C. He achieved over 50 national television specials and print featurestories as well as regional and local news coverage, resulting in over $15 million in advertising value equivalency. He worked with his wife, Maddy, to book popular entertainers and direct over 100 theatrical and concert stage events. He is a leading supporter of historical resources, National Historic Trust and the humane society in the Asheville area. Jay has provided volunteer services to the TNA-FPA for twelve years. Although not affected by facial pain, he gained compassion for people in pain when he heard their stories and talked with them while videotaping a series of national TNA conferences led by his friend, Michael Pasternak. Jay said he became hooked on the cause of finding a way to bring relief to men, women and children struggling with terrible pain. He and his wife, Maddy, have homes in Asheville and Indialantic, FL. 

 

 Former Trustees

 

Jean Raymond is retired after working over 25 years in computer programming, software design,

network architecture, database management and tracking systems. Jean has rendered technical support for

companies such as Western Electric, Digital Equipment Corp. and Dartmouth College/Dartmouth

Medical School. She has served on TNA-FPA Board of Directors since 2010. Jean was appointed

to the FPRF Board of Trustees to serve as liaison with the TNA-FPA board. She lives in Middlebury, VT.

 


 

In Memoriam 

 

Albert Rhoton, Jr. 1932-2016 

 

World Neurosurgeon of the Year Albert Rhoton, Jr., MD., was a Facial Pain

Research Foundation (FPRF) Trustee.

 

He had treated over 3,000 patients with trigeminal neuralgia and related

neuropathic pain before he retired and became the inspiration for the FPRF’s

cure research projects. His guidance and vision was evident when he proclaimed

the founding of The Facial Pain Researth Foundaion was

 

“ONE OF THE MOST IMPORTANT DAYS IN THE HISTORY OF TRIGEMINAL NEURALGIA!”

 

In March, 2013 He said “it is time to find a cure!” and the Foundation’s

 

International Consortium of renowned scientists moved forward. 

 

 

 

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